Why Aren’t We Talking About the Impact of Neurodivergence and Queerness?

Neurodivergent queer people are erased in sex ed, by lawmakers, and in the media. This piece explores the harms, and how we thrive in spite of it.

Let’s break it down.

⚠️ This post discusses sex, gender, sexuality, bullying, and discrimination. If this isn’t your thing, grab a snack on your way out. 

Neurodivergent people are queerer than average. By a lot. Why? 

Hand-drawn image of a multiracial group of people with heart tattoos on their upper arm standing in front of a background of hearts with a large rainbow.

Depending on the study, somewhere between 30% and 70% of neurodivergent people identify as LGBTQIA. Autistic people are more likely to be trans or asexual. Most autistic women identify as lesbian, bi, or queer.

 Bisexuality is more common in neurodivergent men, and ADHDers of all genders are more likely to be in polyamorous relationships or into kink.

If you’re in these communities and bamboozled by the flood of late diagnoses, it’s not in your head. Go ahead and check off “Am I neurodivergent?” on your bingo card while you’re at it.😁

It took time to settle on the labels of “neurodivergent” and “queer”. After lots of self-doubt and soul searching, I eventually landed on queer, because it’s easier than going into full detail: feminine, nonbinary, and sometimes, no desire at all. Neurodivergence took longer to realize, because when I was growing up, ADHD and autism were boys’ problems.

Both queerness and neurodivergence show up in childhood and adolescence. Is it because of how we’re socialized, or are we built differently? We share a common experience of being bullied over our differences and finding community outside of the dominant culture, making it easier to ask “why?

Seeing society’s flaws through the lens of neurodivergence

There’s something about being an outsider that makes it easier to ignore what society says we should do because it’s easier to see the flaws and hypocrisy. After all, why settle for someone you tolerate instead of someone you’re actually attracted to because it’s the “right” thing to do?  

I tried that. It was the 90’s, and heteronormativity was king. I regret it now, because those partners deserved to have someone who had more than a tepid interest in them.  

Coming out was a process of reading and self-reflection, something I was pretty good at. Eventually, I came to the conclusion that attraction is attraction, regardless of what their outside looks like. 

Turns out, my experience is pretty typical for neurodivergent folks. We don’t know if this is because of our early traumas or if this is how we’re wired. If we’re already seen as abnormal, what’s to stop us from wondering how right the heterosexual “default” is? And if multiple consenting adults all want to be in a relationship together, why is that taboo? 

Moreover, what’s with this whole “gender” thing? Why is it only “male” and “female” in western culture, but other cultures worldwide recognize more than two genders

Neuroqueer outsider: rejected twice, always resilient

It’s hard being a neurodivergent kid. While you try to find and read the fuc– er, fine manual that somehow got lost in the mail, bullies and your own missteps lead to loneliness and despair. Unlike kids today, I didn’t have to deal with assholes following me home through my phone. For many, masking becomes the only viable survival strategy to fade into the background along with your sense of self.

Neurodivergent queer kids get this twice over. Not only are they singled out for their oddness, but as their sexuality becomes clearer to those around them, their social circle shrinks further during a time when everyone is trying to find where they belong.  

Inclusive groups give us a sense of belonging. Image of a black woman with white curly hair, horns, and glasses with a character sheet in front of her. 

"Women playing in D&D"
Image from Pouazity on Flikr.com

This leads us to find more accepting subcultures: punk/emo/goth, science fiction/fantasy fan groups, gaymers, drag, anywhere we can bond over being social rejects.

Here, we finally find acceptance, safety, and connection instead of assumptions.

Crushed by stereotypes about neurodivergence and queerness

It’s assumed that autistic people don’t want sex. Meanwhile, rumor has it that ADHDers are all sluts. And queer people? Weirdos with funky colored hair and piercings in surprising places who will sleep with anything with a pulse.

There’s a broad range of sexuality and desire found among neurodivergent people, from the cultural standard of cisgender, monogamous, and heterosexual to radical agender pansexual polyamory. 

 “Queer” is a very broad term that encompasses a lot of people and preferences. Some may be highly sexual, while others remain celibate. One person may be open to dating any and all expressions of gender, while others, like me, have a narrower set of preferences. 

Stereotypes shove us into a box, removing our agency and personhood. When queerness and neurodivergence collide, we’re exploited or the victims of violence. Sometimes both. We’re not seen as individuals, but as a pariah that needs to be “fixed” when all we want is to have a meaningful life and a community that lets us express ourselves. Instead, we’re pushed to the margins of society, where we finally find community.

Twice erased, but still queer

Photo of a group of protestors waving gay and trans pride flags. Two signs are being held up by two men: "We support trans soldiers: and "Courage knows no gender". 
From the Stop Transgender Military Ban in Washington, DC. on 07-29-2014

The experience of queerness and neurodivergence is eerily similar. We’re pressured to be “normal,” which changes, depending on who’s talking. We’re left to deal with our restrictive, typecast roles and the disadvantages that come along with them.

Schools, lawmakers, and media blackball and erase us from public life.

Sex ed left us out

Both neurodivergent and queer people are overlooked when it comes to learning about sex and sexuality. Sex ed in schools is abysmal. In the US, it’s common to get a quick sermon on the dangers of STIs and how abstinence is the only option for horny teenagers. There’s little, if any, discussion on other topics surrounding sex like non-heterosexual identities, consent, abuse, masturbation, and pleasure. 

It’s an uncomfortable topic to have around children, particularly disabled kids. But studies are pretty clear: age-appropriate sex education has better outcomes over our lives. As these children grow into adults, they’re less likely to find themselves in exploitative or abusive relationships (common among autistic girls) and more likely to form healthy, stable attachments as teens and adults with fewer unplanned pregnancies and STIs.

 Autistic kids need a little extra support here. Our social difficulties make relationships harder, since we miss cues or come off in ways we don’t intend to. Instead, we’re left to figure it out on our own.

The system fails neurodivergent and queer communities

Marginalization doesn’t stop at school. We’re banned from bathrooms, sports, healthcare, and even dressing in a manner that feels right to us. After a long fight for marriage equality in the US, we’re facing the possibility of losing it once again

At the same time, the US health department keeps sending out junk science saying that chemicals cause autism despite extensive studies that find no link. 

 Lawmakers and institutions are working overtime to erase us.

And if you have a visible disability or are BIPOC? There’s even less out there and more micro-and macroaggressions to deal with in everyday life.

.gif of famous meme from Clue (1985): "Flames, on the side of my face, breathing, breathless, heaving breaths..." Madeline Khan's hands are up on either side of her face, showing where the flames were.

Media stereotypes do us dirty

More often than not, we find trans and queer-coded characters as villains, sex workers, or dead. We’re at the margins and seldom, if ever, protagonists.

When we’re not punished for our queer sins, we’re fetishized as the Manic Pixie Dream Girl. She’s both autistic/AuDHD and queer-coded with her bright hair and quirky fashion, but she’s always interested in the white-bread protagonist idolizing her. Despite how she’d actually be in real life, she’s usually straight and occasionally bisexual, and hides her autistic traits outside of her odd but cute special interests. 

She could be interesting. She could struggle with coming to terms with her sexuality, gender, or navigating a healthy relationship. She could struggle with giving up her comfortable solitude versus her attachment to another, or work through past traumas that are roadblocks in her current relationship. Anything would be better than a stale character that could be replaced with a sexy leg lamp. 

The autistic coded Sheldon/Sherlock type is a brilliant asshole. Sherlock’s asexuality is not addressed in the original stories (blame the Victorians), and poorly handled in modern adaptations with passing mentions and none of the stigmas or pressures asexual people face. Sheldon’s inability to understand people is played up for laughs, instead of diving into the shame and anxiety it brings to the table. Both reduce autistic men to obsessive jerks, but if he’s the hero, he can still have a beautiful woman as a reward for his good deeds.

There are shows out there with good queer representation, like Steven Universe, but they’re rare. But there’s hope: queer, neurodivergent artists like Billie Eilish show the world our true potential.

What dysphoria feels like when you’re autistic

Autistic people are more likely to be trans, nonbinary, or agender. Perhaps this comes from the freedom to question norms when you’re on the outskirts of society, or maybe it has more to do with the deep discomfort of being in your own body. (probably a little of both)

I don’t have a lot of experience with dysphoria myself, aside from having to wear a uniform with a tie and feeling anxious and guilty over my body size. I reached out to some friends who are both autistic and trans who were kind enough to talk to me about their experiences. Big thank you to them!

Changes are difficult for autistic people, and when puberty hits, it can feel more like mutation than growing up. The body they were used to begins to alter itself without their knowledge or consent, morphing rapidly into something unrecognizable. Emotions around menstruation, body hair, and other physical changes linger and fester into deep discomfort and anxiety.

The survival strategy of masking makes it harder to know what they’re truly feeling, as well as those with more pronounced alexithymia.  Is this normal, or something else under the surface? One friend knew when they were around ten. Fortunately, they have a supportive family and were in a better position than many others. Another friend struggled behind their mask, knowing something was wrong but never being able to put a finger on what it was until years later. 

It’s hard to force yourself to fit into the gender assigned to you at birth when you feel wrong in your own skin. Demand avoidance digs in its heels, refusing to follow along and shouting, “This isn’t me!” If the box of your assigned gender doesn’t fit, it doesn’t make sense to keep cutting off parts of yourself until you pass.

 

If you have an autistic loved one questioning their gender, offer them a safe space. Listen, empathize, and help them navigate executive dysfunction and anxiety to get them the care they need.

We’ve always been here and we’re not going anywhere

Neurodivergence and queerness are parallel paths that converge for many of us. My childhood was typical for someone with AuDHD, but did that ostracization lead to my years of questioning sexuality and the norms surrounding it before settling on an answer that felt the most truthful to me? Or was I always primed for queerness (I have other queer family members) and my neurodivergence is a happy accident? 

It’s not easy feeling like an outsider. It’s harder to form friendships or even feel a part of subcultures and communities of people like you. But somehow, we find our tribe, full of neurodivergent queer people like ourselves. Each member of this found family is precious: they are the safe haven your inner child needed but didn’t get. Whether it’s online groups, the friends you make at cons, your ride-or-die drag mother and sisters, an inclusive D&D group, or the friends who always meet up for the Pride parade, every voice that says “I know who you are and love you anyway” helps us build happier, more fulfilling lives.

If you see yourself here, I see you, too. Go find your tribe and the people who accept you in all your neurodivergent goblin weirdness. If you’re looking for one, hop on over to my facebook page and start a conversation.

After all of this, I need a puppy palate cleanser! Next time, I’m letting my dog nerd flag fly with a dive into the importance of enrichment.

Is It ADHD, Autism, or Tik Tok Brain Rot? The Rise of Self-Diagnosis

Self-diagnosis of ADHD and autism is on the rise. Is it awareness or TikTok brain rot? Here’s the messy truth about online diagnoses.

The shame and anxiety of living undiagnosed

You’re late to work again. Shouldn’t have stayed up until 4 AM working on your project, but time got away from you. It always does. You’ll lose some PTO for this, but it’s better than getting written up. Your boss is tired of it, so you rush to your desk hoping they didn’t notice. You’ve been down this road before… It leads to a short conversation before you pack up your things. 

The job sucks and you’re always anxious. At least the pay comes close to barely making ends meet. You can’t help but feel shame as you get older while your coworkers remain the same age. You showed promise in school, but never lived up to it. “Gifted,” my ass.

People living with undiagnosed ADHD and autism struggle in many ways. 

Image from paperbeatsscissors on deviantart.com

For the undiagnosed, life is a series of blue shells on a Mario Kart track. Anxiety and self-doubt are constant companions. Our outward symptoms are misdiagnosed while the underlying causes remain unseen. Discrimination around queerness, along with unemployment, addiction, and incarceration, drag us into cycles of poverty we can’t escape.

We’re told our wasted potential is our fault, leading to higher rates of PTSD, eating disorders, anxiety, depression, and suicidal thoughts. Life has us burnt out and don’t know why. 

It’s estimated that about 15% of the population is running with a Linux brain instead of Windows. In the US, only 7% have been diagnosed with ADHD and a mere 2% have an official autism diagnosis. Millions suffer without ever realizing why they’re different.

Lefties will tell you it’s frustrating living in a right-handed world, but we adapt. There are workarounds, but it’s harder to find solutions when the answer isn’t as easy as noticing which hand a baby prefers. Our family’s “normal” might feel familiar to us, but look alien to our neighbors.


Prefer to listen?

Neuroqueer: At the Intersection of Neurodivergence and Queerness Amy Says Things


Self-discovery (and diagnosis) through your TikTok For You Page

You don’t have the bandwidth for long videos, so you’re mindlessly scrolling through Shorts. Now that you’ve got a decent buzz, you don’t care about nagging pain and distracting noises. A handsome Black man in blue scrubs talks about signs of autism in low-support individuals and something clicks. Something inside you wakes up as you re-watch the video and make connections. Your feed offers you other videos: short “put a finger down” tests that you crush, life experiences, and neurodivergent life hacks. For the first time in your life, you feel seen, and your childhood suddenly makes sense.

“Am I… neurodivergent?”

Labels are powerful, so when social media gives us one, it’s hard to ignore. We end up jumping down a rabbit hole to understand ourselves better, but it doesn’t always lead to the truth.

30% of people under 30 believe they are neurodivergent, which is higher than the actual estimated numbers. Short form videos, listicles, and quizzes are a mixture of genuine neurodivergent symptoms and common experiences warped in a funhouse mirror where we see what we want to. 

When curiosity meets hyperfocus, we lose hours (well, days) digging for answers. When we come up for air, we’ve built a detective wall with more questions than answers, screaming “Bigfoot conspiracy.” It’s Schrodinger’s Diagnosis at its finest.

Sure, our kid, niece, or nephew was diagnosed and doctors mentioned it’s genetic, but that doesn’t mean anything…

Right? 

Or should we get offline and touch grass?

Misled by algorithms, Dr. Google, and our AI “therapist”

You scroll for hours, finding more content from neurodivergent creators. Your experiences are similar, but you’re not sure. All of your favorite creators seem to have ADHD, and a few admit they’re autistic. Is that a sign? You search Google for answers and strike up a conversation with AI. All the evidence seems to point to the same answer. You are definitely neurodivergent and show signs of high masking skills, but is it autism? ADHD? Both? Or are you making this up? 

Algorithms are good at figuring out what we’re interested in, but it doesn’t care if the content is realistic or truthful. 15-60 seconds is barely enough time to get a simple idea across, let alone a complex one. In an ideal world, media literacy would help us separate facts from nonsense, but we’re terrible at it.  

Entertainment is king. Algorithms push engagement– and rage-bait to us more than thoughtful, well-researched pieces. Short- and long-form videos give an illusion of truth, and we mistake our wading in the shallows for a deep dive into a topic. It’s easy for a creator to lie if they say it with conviction, and we keep falling for it because it feels right.

AI does this on steroids. Your favorite chatbot posing as a diagnostician isn’t accurate, it gaslights you by nodding along.  Its false confidence fuels our hopes and fears, twisting them into heroes and monsters while steering us away from reality.

Vector image of a pink monster in a white coat with a stethescope and thermometer.

Dr Google will lead you astray.

Even search engines lead us astray. The way we phrase questions changes our results. Our bias is baked into the query, giving us the answer we already had in mind… ask anyone who believes the earth is flat who “did their research”. Technology pulls us in by telling how good looking and smart we are (and hey, you’ve got a nice butt). It wasn’t designed to tell you the truth.

Medical professionals are understandably frustrated by this. Their expertise means nothing in the face of the “evidence” we uncovered in our shallow deep dive. In a perfect world, we’d see a doctor first for a medical diagnosis…

But the world is messy and broken.

Why so many people don’t (and can’t) get an autism or ADHD diagnosis

You start letting your leg bounce when you’re working on something, breaking the rule you learned in middle school. It feels good, and it actually helps you concentrate. You look into fidget toys and other ways to keep your hands busy and mind on task. As you delve into the experiences of those with ADHD and autism, you know you should talk to a doctor.

Trouble is, your PTO is just about gone and you work when your GP is open. Taking time off means you don’t get paid, and missing a half day or more of work means you won’t have enough for bills, not to mention the hassle of asking for time off. What if you’re wrong? Sure, you’ve run your symptoms by the DSM-5 and your online test results show a clear pattern, but are you answering it “correctly” because you figured out what the intended answer is?

I may as well lay my own cards on the table. I have an ADHD diagnosis from a professional, but not one for autism. She noted autistic symptoms, but we didn’t take it further. There are lots of reasons I think I’m autistic: family, childhood, symptoms, and masking all point to it. Maybe I’ll get an official diagnosis, but it won’t stop me from making accommodations that help

Let me be clear: If you think you might have a medical or psychiatric condition, you should see a licensed  professional. The internet may be our first stop, but it should never be the last.

Unfortunately, most people don’t seek advice from a professional.  

Image of hands holding open an empty brown leather wallet

Finances are a common barrier to getting a medical diagnosis for many neurodivergent people.

Image from needpix.com

For neurodivergent people in the US, our un- or under-employment is a major factor. Without access to affordable healthcare, we’re stuck. 

If we see our doctor, they refer us to a specialist, as they should. This means more waiting, hoping they’re affordable and within our network, and testing. If we don’t live in or near a large city, specialists can be hours away. It’s a long, expensive, and time-consuming process. Is it worth the hassle?

Countries with more robust healthcare systems, like England, face different barriers. Wait times for specialists can be years long, and paying for it can cost upwards of £800 ($1,084). If you’re in a low-wage job due to a criminal record, substance use disorder, severe depression, or disability from a chronic illness, it’s out of reach, too. 

Anxiety is common among neurodivergent people… who would have thought that constantly monitoring our behavior so that we appear neurotypical would be bad for your mental health? Social struggles are already a hassle and a half, and worrying about being called a hypochondriac or drug-seeker makes it worse. 

Autism and ADHD were seen as (white) boys’ problems until recently. There are lots of clinicians who still hold this belief, leaving adults, minorities , women, and girls behind. And if we’re smart enough to be labeled gifted or learned how to mask our symptoms early on, we pass under the radar. ADHD plus autism is surprisingly common, but it gets missed when Autistic rigidity is tempered by ADHD impulsivity. 

An official diagnosis is bittersweet. I’m relieved to have a name and sad I carry a label. It’s not the first time I’ve been down this road, but it took time to come to terms with it.

There is hope. Telehealth visits make it easier to see doctors. We can bypass our social anxiety and remain in a safe place while we deal with our fear of people in white coats. Healthcare should be accessible to everyone, and using technology within the system is an important step towards that goal.

As we understand the lifetime impacts of undiagnosed neurodivergence, we are seeing more adulthood diagnosis, particularly inattentive ADHD. Studies are broadening to see how race, ethnicity, and gender play a role in how symptoms show up, helping everyone get earlier diagnoses. Online communities bring acceptance, support, and help. As awareness grows, it’s less stigmatized. Social media shines as neurodivergent creators share their lives online and raise awareness.. 

Building community and validating self-diagnosis without losing accountability

You keep looking for ways to get a medical diagnosis, but for the first time in your life, you’ve found others like you. Dipping your toes into the waters of online communities brings a sense of peace. It’s freeing, even if they’ll never see you in person. Someday you’ll get an official diagnosis, but for now, you’ve given yourself permission to find solutions to sensory problems that plague you: headphones, earplugs, stim toys, weighted blankets, and vitamins to supplement your restricted diet. Life is brighter than it’s been in a very long time. 

Online spaces agree: Get a medical diagnosis if you can. But given the significant barriers we face when it comes to getting one, self-diagnosis is valid. Sure, we may have been bamboozled by our feed, but if we like to problem-solve with a stim toy in hand, what’s the harm?

Self-diagnosis comes with responsibility, though. Anyone using a psychiatric disorder as an excuse for bad behavior is avoiding accountability. (Seriously, Kanye? “Ooops, all autistic” is BS. Do better.) Even if we miss social cues or come off in a way we didn’t mean to, we should own our mistakes and learn from them. We have to make changes so that we’re a better parent, partner, and friend to those around us instead of blaming all of our problems on neurodivergence. 

Woman playing with stim toys

AI generated image

Regardless of whether or not we’re “official”, we finally have the tools in hand to get the support we need. So use them, diagnosis be damned, and make your life better.

Next time, we’re going to tackle a strange phenomenon among Queer people: nearly half are neurodivergent. Why?

Do you have an official or self-diagnosis?. What tools or strategies work for you? Comment below, I’d love to hear your story.

Think you might be a Burnt Out Formerly Gifted and Talented Kid? Try my burnout tracker. It’s free and will help you spot patterns to help you heal.

Podcast: Click here for this link or here for all previous episodes

Part Two: How to heal from Autistic, ADHD, or AuDHD burnout

Recovering from burnout as a neurodivergent adult? This guide offers practical, compassionate steps tailored for autistic, ADHD, and AuDHD brains, from rest to resilience.

Neurodivergent burnout recovery strategies for autistic, ADHD, and AuDHD adults: practical, compassionate, and real.

I knew I couldn’t do this alone.

I found myself lying on my parents’ couch staring at a globe near the fireplace in the deepest shut down I’ve ever experienced. Somehow I found the grit to make my way to them in the midst of the worst crisis I’ve ever been in. A small part deep inside of me knew I needed help, now

I don’t know how long I stayed there, staring and hugging a Squishmallow after my parents gently placed a blanket on me. I heard their voices from another room quietly discussing the situation, but I couldn’t move. My life was in shambles and I was adrift.

Eventually I fell asleep. My parents came to me later, plans in hand, made an appointment with a trusted psychiatrist, and with their help, I began taking steps towards healing and recovery. I couldn’t stay lost and hurting forever. I had to start the slow process of recovery and rebuild. You can, too.

In my last post, I covered the signs and symptoms of burnout. Once you recognize what’s going on, you need to take steps to recover from burnout, begin healing, and find ways to prevent it in the future.

First and foremost, give yourself time and permission to rest

Burnout is our body’s way of saying that what we’re doing is unsustainable. It was never possible, no matter how much we wanted it to be. 

We have to take a step back, no matter how long it takes, so we can return to what matters. This is easier said than done when there are daily obligations like parenting or even taking care of pets, but more than anything, take as much time as you can to rest.

Find help

Maybe it’s having others take up difficult chores, reduced hours or different duties at work, asking a spouse to take up more parenting duties, or seeking help from a doctor or therapist. Reach out and build support structures to help where you struggle. 

You may find yourself more sensitive to your environment than usual. Try different strategies if your usual coping methods aren’t working. Use earplugs or headphones to block out noise, wear comfortable clothing (fashion be damned), dim lights if they bug you, and find ways to make other tolerable-but-not-really irritations in your daily life easier to deal with. 

Find and connect with other neurodivergent people online and see how they manage their own challenges. Community building is difficult for autistic people, but having someone who really understands what you’re going through helps build resilience through shared stories and experiences.

Outsource some of your decision making to avoid decision paralysis. Gen AI can be really useful here. I use it to help me plan my day by telling it where I am emotionally, what I want to do, what I have to do, how much pain I’m in, and how many hours I think I can work before I collapse. I let it prioritize my list, break down complicated steps into something easier to handle, and celebrate when I cross anything off of my list. This keeps me moving forward and motivated.

If you have a trusted friend or family member who wants to step into this role, let them, but be aware that the demands you are putting on them may not be sustainable. You’ll need to find other ways to meet those needs over time.

Asking for help is morally neutral. 

It’s easy for high masking people in particular to feel ashamed because we can’t do what we’re supposed to. We did not ask to be neurodivergent, nor did we sign up for a world not built for us. We have to adapt, and asking for help is one of many adaptations.

Identify Stressors and reduce them where possible

I hear you: It sounds like a pipe dream when you’ve got other people or animals relying on you. Parents and other caregivers can’t stop when you’re depleted of everything, and for those in hourly positions, taking several weeks off is not feasible. Autistic/AuDHD people may not be as in tune with their bodies, but you need a name for what’s bothering you to formulate a plan for a sustainable life. Minimize what and where you can. 

Engage in stims, special interests, and activities that are enjoyable

At first, you may not be able to do much before you’re exhausted. Every little bit of pleasure or joy from a special interest helps to rejuvenate us. This is a vital step to your recovery.

High masking people may not be aware of what and how they stim after having them shamed out of us as children. One person I know likes to chew and the texture of mardi gras beads rolled between her palms, so she keeps a chew necklace and beads handy. I prefer spinner rings and fidget cubes, and re-discovered how much bouncing my leg or foot helps me concentrate and remain grounded. Get some fidget toys and experiment. 

Find time to fall back in love with activities and hobbies that rejuvenate you, even if they’re solitary. My broad special interest is arts and crafts, so I crochet both as a stim and because I like to make things.

Let go of shame

This is the hardest step of healing from burnout. Running face first into your limitations feels like a failure, but it’s not. 

It’s hard to let go of impossible expectations you’ve built for yourself. It takes time and a lot of self-compassion, but it is one of the most important things you can do. There is no shame in doing less if it keeps you from crashing out. Building a sustainable life, no matter what it looks like, is the only way to keep from falling into a cycle of burnout and temporary recovery

If you need extra help, finding a therapist who understands neurodivergence is a godsend. You can look for therapists who emphasize trauma-informed care, as well as those who cater to the LGBTQ community, since more of us are neurodivergent. 

Re-prioritize your life

Going back to the life that caused you to burn out in the first place isn’t sustainable. We don’t have the spoons our neurotypical peers have, and our finite energy needs to be divvied among our non-negotiable “musts” and special interests. 

Maybe it’s shifting to a part-time job, having a parent or friend take the kids once a week, taking the dogs to daycare, or carving out a portion of each day dedicated to you and your needs. It’s not selfish, it’s self-care and will sustain you while you deal with the stressors you can’t walk away from.

And lastly, don’t overcommit

Neurodivergent burnout is a vicious cycle, especially for those with low support needs. As soon as you feel better, it’s natural to want to go and catch up on all you’ve been neglecting, but overcommitting leads you back to a place where your body and mind refuse to work. This is harder for ADHD/AuDHDers due to a lightning bolt of inspiration and energy, but pacing ourselves (it’s hard, I know) is better than going until you can’t.

Recovery is possible, but life won’t be the same.

Neurodivergent people need different strategies to recover from burnout since it affects every part of our lives. We can’t define ourselves based on our neurotypical peers. Our path to success and happiness looks much different. 

Our talents and skills lie elsewhere: finding patterns, creative insights, keen observation, and poignant ways to connect with our loved ones. Life takes a lot out of us, and we need to realize that our sensitivity is not a failure. We simply need different accommodations in order to thrive. 

Energy levels fluctuate. Success is built on knowing our limits and not overextending ourselves. Burnout doesn’t mean you’re broken. The world is tailored for the allistic majority. Our needs are different, but not meaningless. You deserve rest, resilience, and joy on your own terms.

Looking for tools to help track your burnout symptoms and recovery process? I’ve created a free burnout tracker to help you better understand your symptoms, track daily progress, celebrate small wins, and give words for that big ball of emotion that keeps getting in the way.

I thought I was a failure, but it was neurodivergent burnout: Part One

I thought I was just failing at life. Turns out, I was deep in neurodivergent burnout. This is what it looks like from the inside, and how it’s different for ADHD, autism, and AuDHD. If you’ve ever felt broken by “normal,” you’re not alone.

I could pretend anxiety didn’t exist until I stepped in the car.

First, it was a queasy stomach as tension crept across my abdomen and into my chest. I tapped the steering wheel with staccato fingers, taking deep breaths to center myself. I yelled at drivers who ignored my personal rules, not that it helped. It got worse as I crested the bridge, despite the beautiful lakeside and surrounding city. Nothing could stop the impending dread before I stepped foot through that door. I could feel my life slipping through my fingers and the harder I tried to hold on, the more it felt like bailing out a sinking ship with a teacup.

It was harder to tolerate noises and sensations I usually had no problem with. Noisy dogs were too much, and pain from loud bass became my personal hell. I couldn’t stand the feeling of compression from leggings or cool air on my skin despite the Texas heat. I couldn’t concentrate. My memory was an even bigger pile of garbage than usual. My sanity unraveled as I struggled to take care of my dogs. I was exhausted after doing the smallest task, but didn’t listen when my body and mind screamed at me to stop. I didn’t know how to, so I crashed headlong into yet another failure.

No matter how hard I tried, I just… couldn’t. I didn’t have a name for what was going on then, but I do now: burnout. 

What is neurodivergent burnout, and how does it differ from work-related burnout?

3-D image of a brain on fire. Created by kjpargeter on freepik.com

Burnout is apathy and exhaustion brought on from chronic stress. You give it your all and keep failing until you give up. 

Chronic stress causes high cortisol levels and dysregulation within the adrenal system. As we’re exposed to it, chemical messengers flood our system, triggering our fight/flight/freeze/fawn response. Over time, it wears down our mind and body, causing everything from depression, addiction, heart disease, and even triggering autoimmune disorders.

Work-related burnout comes from a toxic or traumatic work environment, unsustainable workload, or no support at home. It builds up until we can’t take it anymore, but with enough rest, therapy, and refocusing on other important areas of our life, we get over it.  

Now imagine if this wasn’t one area of your life, but everything. Chores, commitments and obligations always fall short of your expectations and those around you. You’re told to be more spontaneous even though a change in plans feels like a rug has been pulled out from under you. Your spouse is both annoyed and mystified because you can’t find your keys but you can remember where they left their water bottle. You’re annoying because you’re too literal and say exactly what you mean without subtext. You clean like Tigger hopped up on caffeine but the end result isn’t actually clean, something you’ve heard over and over by your parents, roommates, and partners. 

You’ve earned the label of easygoing, even though you’re in a constant state of panic. It’s easier to go with the flow and  shove all the “wrong” parts of yourself so far down you no longer know who you are or how you feel. You’re not genuine around anyone, ever. You’ve become a people pleaser to save yourself from shame. 

The mask eventually cracks. The treadmill of life is going too fast, even though you hold on for dear life. Your bucket of woe overflows and you implode.

There’s exhaustion, and then there’s… this.

Neurodivergent burnout is marked by extreme exhaustion, dysregulation of emotions, anxiety, and depression that destroys our ability to carry on daily tasks. It’s like going through your daily life with a bad case of the flu or Covid, except there’s no virus making you feel this way.

You used to be able to handle kids, a full-time job and your spouse, and now you can’t get out of bed. The smell of food is nauseating, but somehow you’re expected to feed yourself.

A flat drawing of an overwhelmed woman surrounded by letters. A loud bullhorn is beside her. At her feet, a meter shows her emotions are in the red. 

From redgreystock via freepik.com

You stink because you haven’t showered, even though you know it will make you feel better. As the gulf between “want to” and “can” gets wider, exhaustion gets worse. Shame and panic attacks become routine.

There are moments where you feel more like yourself, but they disappear the moment you play catch up on all of the people and things you’re neglecting. Watching yourself wither on the vine is terrifying, especially as days turn into months, or even years. Becoming this disabled, even if it’s temporary, feels like a profound loss. 

Burnout isn’t a one size fits all experience. Our unique neurology affects how we break down and cope, making the experience unique among autistic people, ADHDers, and AuDHDers.

Autistic burnout

Autistic burnout is caused by the stress of dealing with painful or distressing sensory stimuli, masking, and the daily pressures of life piling up until the dam breaks. Once that happens, basic tasks become impossible, and every annoying noise, smell, or texture gets cranked up to eleven. Things you were able to do or tolerate suddenly become unbearable. Meltdowns happen over seemingly insignificant things.

 A grocery store with bright lights, aisles of decision paralysis, and people becomes a weekly visit to hell, taking at least a day to recover from. Life shrinks to nothing, and a robust support system made up of medical professionals and trusted people (with the occasional social worker thrown in for flavor) is vital for healing. 

For those of us with chronic illnesses, symptoms get worse as we struggle to cope. Occasionally, burnout can trigger new diseases like fibromyalgia

Autistic burnout is the only one recognized with clinical criteria: chronic exhaustion, increased sensory sensitivity, and a loss of skills like thinking, remembering, and planning for three months or more. It can last years, and sometimes leads to permanent losses in ability and tolerance.

This is especially frustrating for those of us with low support needs who don’t get diagnosed until we’re already deep in burnout. Since we mask so well, we don’t have much to fall back on. Without solid support systems, our crash-outs hit even harder.

ADHD burnout

ADHD burnout strongly resembles work-related burnout, except it’s caused by the stress of masking ADHD symptoms. For us, our impulsivity, inattention, and hyperactivity get worse. Overcommitted schedules fall apart because we can’t keep up. Motivation becomes scarce, things that used to be easy are suddenly impossible, and it’s harder to control our emotions. Time blindness and procrastination further erode our lives and confidence.

Chaotic organization systems suddenly fall out from under us. You blame yourself for never finishing anything. What’s the point when it’s only going to end up in the graveyard of half finished projects and good intent?

Work and school take the brunt of it, because no matter how hard we try, we can’t concentrate. We forget projects, deadlines, and our stupid keys (again), no matter how many reminders or systems we set up. As we feel the weight of failure, exhaustion takes hold and we ask ourselves, “Why bother? We’re only going to screw it up again.”

Occasionally, we get bursts of inspiration, and we scramble to get some or all of the things we’ve neglected done. Our bosses and loved ones exclaim, “Finally!” which makes our monumental effort feel like failure. We overcompensate by overcommitting until once again, we’re unable to manage and the stress from failing again leads to worsening exhaustion.

AuDHD burnout

AuDHD burnout has features of both autistic and ADHD burnouts.  Like autistic burnout, everything is too loud, too sharp, too… much. We overreact over the slightest change to our routine, and can’t remember what we did a minute ago, let alone our next appointment or deadline. 

 Our impulsivity leads to volatile emotions or engaging in risky behaviors we normally wouldn’t. On the surface, it resembles bipolar disorder, but without mania or hypomania. Instead of buzzing thoughts and grandiose ideas, we’re exhausted to the point we can’t move. 

Worst of all, have a twisted mirage of recovery when inspiration strikes. It disappears as quickly as it arrived, leaving us in a losing game of catch up. Our obligations, housework, and job performance remain out of reach no matter how hard we try. Meltdowns, which may have been rare, become frequent and losing control in a puddle of tears or feral rage is terrifying. We can’t seem to find the words for what’s wrong.

People with both autism and ADHD are less likely to get diagnosed as children, leading to weak support systems when we crash. We still need help when we burn out, although it can be harder to get since we mask well until we can’t, leaving our loved ones as confused as we are when we fall apart. 

The burnout cycles

Burnout isn’t linear, it’s cyclical. We begin at an unsustainable level of functioning until we break, followed by a crash, slowly building back to a functional baseline, overcommitment, and inevitable collapse . The cycles look different for each: 

 Autism

  • Demands are unsustainable 
  • Prolonged stress without adequate support leads to overwhelm
  • Severe fatigue and meltdowns
  • Demands are reduced
  • Energy and function slowly improve, which leads to increased demands

ADHD

  • Inattention and impulsivity lead to failure
  • Stress and overwhelm
  • Exhaustion 
  • Rest
  • Impulsivity and hyperactivity lead to another burst of energy

AuDHD

  • Masking leads to overcommitment
  • Lack of support leads to a “tough it out” mentality, masking, and overwhelm
  • Increased sensory sensitivities lead to irritability and meltdowns
  • Exhaustion leads to physical and mental collapse
  • Forced rest leads to another burst of energy

Once we feel better, it’s natural to try to take on the duties and obligations we had before, but this only leads us back into the cycle. We have to recognize our limits and let go of shame, which is easier said than done. For me, the experience is a lot like coming to terms with my own chronic illnesses. I had to let go of “normal” and embrace “sustainable”. 

It’s okay to grieve. It’s okay to get mad. You’re not broken. You are you, with gifts and brilliance the world needs, even if you don’t always see it.

Next week, we’ll look at how to recover and rebuild a sustainable life. 

Have you ever experienced this kind of burnout? I’d love to hear your story in the comments.

Coping With Executive Dysfunction When You’re a Newly-Diagnosed Adult With ADHD

The author shares their journey of recognizing their neurodivergence, specifically ADHD. After struggling with executive dysfunction and mental health issues, they found solace in social media, leading to a diagnosis. They explore various coping strategies, emphasizing the importance of breaking tasks down, colorful organization, and celebrating small wins to thrive amidst challenges.

I’ve always been a little different from my peers. I was by all accounts, an odd duck. I learned to read on my own at four, I can’t sit and watch a tv show without doing something else, and sometimes I’d doodle instead of taking notes but I could still recall the information while looking at the drawing. I was a bright student, but never seemed to harness it into the excellent grades my teachers thought I should have.

I didn’t realize what was going on until social media diagnosed me. It fed me short video after video from neurodivergent creators talking about their experiences with autism and ADHD and I found myself in their lived experiences.

Turns out, getting a diagnosis of Autism or ADHD as an adult is a little like coming out as LGBT. First, you find out what everyone else already knows about you, and then you tell your parents (or doctor). I ended up getting diagnosed with ADHD by a psychiatrist while in the middle of a serious mental health crisis caused by a toxic work environment and the toll of constantly masking for the last 30-some odd years.

It took some getting used to, despite the TikTok/Instagram/YouTube/Facebook algorithm shouting it in my face, but suddenly things made sense. My struggles with getting tasks done, even while I berated myself for being a lazy, unmotivated, terrible human who would never amount to anything, was a symptom of the lifelong executive dysfunction I struggle with.  

Executive Dysfunction is a common experience among neurodivergent people, and we struggle with all aspects of getting things done. This is frustrating and leads to a lot of self-doubt and criticism. 

What is Executive Dysfunction?

Executive dysfunction can take on many forms, like hyperfocusing on one task and losing track of time, being so overwhelmed with a task that you don’t know where to begin, getting easily distracted during a boring or stressful task, or ignoring an important task in favor of something new and shiny. It shows up in an explosion of chaos on flat surfaces, forgotten bills, and that shiny new planner that will be The One until it inevitably ends up in the planner graveyard like all the others before it. It can be debilitating, impacting your ability to make concrete plans or just simply do the day-to-day tasks that everyone seems to have a handle on except you. It gets tied up in cycles of shame that leave you further paralyzed.

But life doesn’t stop just because we can’t seem to get out of our heads and do the work we need to do. Bosses don’t accept it as an excuse when the task or project isn’t done on time, nor does the electric company take off late fees when you haven’t paid. Friends and family may still be hurt if you don’t respond to their texts or calls, and that doom pile hasn’t cleaned itself. (How rude) It’s hard to know where to begin, and without a solid plan, I stall and end up doing something easier, like amigurumi, leaving the pile to get worse and more overwhelming. Part of living with any chronic condition is learning how to manage symptoms and restructuring your life in a way that makes sense for you. 

“This one crazy hack…” hits home, but is it any good?

Social media can be a wealth of information. Creators like Jessica McCabe or Rich and Rox offer tricks and tips to help make life easier. As more adults learn about their own neurodivergence, we’ve seen an explosion of content, and not all of it is good. 

Great content creators who talk about their struggles and how they find solutions to their problems can help spark our amazing, creative, neurodivergent brains into high gear and look for creative and innovative solutions. I like actionable instructions, but following strategies as I see them in videos or articles doesn’t always work for me. As the saying goes, “If you’ve met one neurodivergent person, you’ve met one neurodivergent person.” Finding what will work for you is as unique as your own strengths and weaknesses. This is a place to let your creativity shine! There are a few common themes from online creators, and it’s a great place to start when you don’t know where to turn. 

Write it down

“I’ll remember later” is a lie I tell myself all the time. I have the working memory of a geriatric goldfish and I keep forgetting that I forget. It’s a vicious cycle. If it’s important, make sure to write it down somewhere where you will see it… on your phone, a sticky note on the bathroom mirror, someplace where it will be there for you. Setting up reminders through your smart speaker can also help keep you on track when you need to get started if you’re the sort to lose notes. I ask my smart speaker to remind me of appointments I have and start times for certain projects to keep me on track. It’s so helpful to have a virtual assistant so I know when it’s time to get something important done. This is especially helpful with my time blindness, which creeps up on me at 4 AM when I realize I should have been in bed a few hours ago.

External cues are a vital coping strategy for people with ADHD. Time blindness sneaks up on us, and without something to take us out of our hyperfocused state, we can easily lose hours to a more engaging but less productive task, leaving us less time to do the things we actually have to get done. Having a reminder on paper, through a smart speaker, or our phones help to remind us of what’s really important.

Break it down

I wish I had the ability to clean without getting paralyzed by the enormity of the task. Do I have gloves, because sticky is a no-no texture that gets me off track because it needs to be fixed now? Where’s the mop, broom, and vacuum? Do I have the right cleaning spray? More importantly, where do I begin? Should I gather all the dishes and put them into the dishwasher or should I declutter the countertops before I think about tackling the dishes? Or should I think about all I need to do and shut down, leaving the mess to loom in the background, silently accusing me of all of my mistakes, including the time I got lost on a field trip in the third grade?

Instead of spiraling into inaction, I like to take big tasks and break them into smaller chunks. If I’m not sure where to begin, websites and apps like Goblin Tools do the work for me. Generative AI can be really useful here, too. Outsourcing the mental load of breaking down goals also helps with the task paralysis of dealing with your task paralysis. It’s an ouroboros of guilt that we don’t have to indulge in.

Breaking things down like this, or chunking, is a widely recognized productivity tool that helps neurodivergent people by breaking down overwhelming chores and projects into easier and smaller tasks. As we mark the little things off, it helps us become more confident in achieving our goals with lots of little wins. This leads to a greater sense of accomplishment, making the next small task seem more achievable. Even if the entire task doesn’t get done, we are closer to the big goal, leaving us with a sense of accomplishment and that oh so important dopamine hit to keep us going. Some like the physical act of scratching off the item on their to-do list, while I personally like the jingle of rainbow coins in a task app. What matters is that you get a small sense of satisfaction or pleasure when you celebrate your small win. It adds up to create a pleasant habit that you keep up with better.

Make it colorful

Many neurodivergent people love color, and using color can remind us of what’s important. Color coding what’s important and then having different colors to show similar steps helps to organize smaller goals into easier, achievable tasks and is a visual reminder of the chunks we want to accomplish that day. A large, overwhelming list in black ink can be paralyzing, but a rainbow explosion of important tasks broken down by color can make it easier to see what’s a priority and what’s not. It’s much easier to look for a specific color to keep from getting lost in a long to-do list. 

Some like the simplicity of common systems like red equals an important event or step. If a color is overwhelming or takes you back to school and a paper with a large, circled F on it, bleeding with red ink, don’t use it. Find your unique color system and implement it into your planning. Use colors you love and make it your own. Just remember to make yourself a key so you remember what’s what until it becomes second nature.

Set yourself up for success

One of the first things I learned as a dog trainer is that in order to help your dog learn, you need to set them up for success. This means giving them lots of ways to earn that delicious treat so that making the right decision is easier than making the wrong one. Eventually, the right decision becomes the easy one because of positive associations with it. The more we like the consequences of a particular behavior, the more we do it, which is a cornerstone in the theory of behaviorism

While this is relatively straightforward in dogs, this is more complex in people when we have more motivations and paths for both reward and punishment to guide our behavior. This means that our solutions are often more complex than putting a lid on the trash can to prevent doggy dumpster diving. Just like scaffolding can help prop up a building in progress or provide workers safe places to work, scaffolding in neurodivergent spaces modifies our environment to suit our individual needs better. 

I love how a clean home looks and smells, and the end result is very rewarding. Cleaning itself is something I associate with anxiety and physical pain from fibromyalgia. This conflict for me leads to more indecision because the ultimate end of a clean home seems so far away from the immediate misery of cleaning. 

If you want to overcome task paralysis in everyday situations, you need to have an environment that sets you up for effortless organization. Take mental loads off where you can and let your environment guide you to better choices.  It’s easier for me to keep my crafting stuff from taking over my entire house when there are cubbies in my living room where I can put my supplies. A trash can beside the couch keeps it from piling up on a side table. A coffee station complete with mugs, creamer, and a coffee machine near your desk is a better option if you get distracted on the way to the kitchen for a new cup. Keeping shoes and socks by the door helps some neurodivergent people and families keep track of whose shoes are where, and more importantly, where they should live. Small changes like this can help keep the mess at bay(ish), which leads to a cleaner home and more motivation to keep it up. 

It doesn’t matter how silly or weird it is. If brushing your teeth is hard, borrow a page from KC Davis and keep pre-pasted toothbrushes by the bedside table or in your bag. Set everything up on auto pay. Buy pre-cut fruit and vegetables if that means you’ll actually eat them. Pay the ADHD tax and use paper plates and plasticware if it keeps you from creating new life on your dirty dishes that are stinking up the sink for the last six months. What matters is that the system makes sense to you. Modify your environment to suit your needs to make daily tasks easier to accomplish with less mental effort from you.

Look for wins

People with ADHD are often dopamine deficient, and finding ways to give ourselves small rewards along the way help to keep us motivated and on track. Dopamine and other feel-good chemicals in the brain help to motivate us to repeat behaviors, but our deficient brains are often looking for our next ‘fix’, and folding my laundry ain’t it. Finding ways to make large, difficult, or boring tasks feel good while we’re doing it helps to keep us on track and motivated. Sometimes, it’s as simple as crossing an item off of a written to-do list in your favorite color. For me, it’s the jingle of rainbow stones in my Finch app. Finding ways to celebrate each tiny step towards a large goal or task helps to keep us on track and heading towards our goals. 

Positive reinforcement is an impressive tool. Telling myself that I did good by accomplishing a small task is more helpful than telling myself I’m a failure. Kindness is powerful, especially when it’s turned inward. Finding small wins and celebrating them helps me stay focused on what’s important while taking the time to acknowledge what’s hard and recognize what I’ve managed to do. This little mindset change has made a huge difference in my life.

Ask for help

For many, body doubling is a godsend for getting tasks done. Having a trusted friend or family member can help you get through a dreaded task faster and easier than trying to do it alone and getting overwhelmed at the very beginning. For those who can’t or won’t reach out to someone else because of shame, body doubling through videos, livestreams, or apps can help keep you motivated without having to explain your chaos to anyone else. Finding a community of like-minded neurodivergent people can also help make living and thriving with ADHD, Autism, or AuDHD easier and more enjoyable, too. There you will also find tips that have worked for others in the community, which can inspire you, and a crowd of people to cheer you on when you do something that seems impossible, no matter how small it is.

It seems simple, but it makes a big difference. Having someone working alongside you, whether they be in person or online, helps to keep us accountable and focused.

Living with ADHD is hard, but not impossible

Even though getting a diagnosis as an adult has its own set of challenges, it is a relief in many ways. I’m not an unmotivated, lazy monster. I am neurodivergent and I need different strategies in order to succeed. By working within my skill set and setting my environment up in a way to help me achieve my goals, I can find ways to accomplish goals in simple yet meaningful ways so that I can finally tackle the floordrobe that haunts my bedroom. I’m not just coping, but I have the means and methods to make sure I can thrive on my own terms. Neurodivergence is beautiful and a force for so much creativity, and making an environment by changing it to suit my needs, breaking down tasks into smaller pieces, and celebrating the small wins keeps me moving towards a life worth living.

What strategies do you use to help with your executive Dysfunction? Sound off in the comments below.